A single grain of rice can tip the scales
In the battle against SMA, Arya stands to lose without your help.
16 Crore is no small amount, but does this mean it will be impossible as well?
Arya Pathak and her parents have fought long and hard for just a glimmer of hope in their lives.
I am posting this on behalf on my friend Rahul Pathak & Astha Muthoo. So please help in spreading the word about them and their daughter Arya.
Since she was one-year-old, her parents have missed rejoicing at developmental milestones. Arya had rolled over and started crawling at the right time, which is why her parents were surprised when she fell face forwards later.
What was thought to be a one-time occurrence turned into a lifelong hellish predicament.
The child who lost her balance never seemed to regain it and the parents rushed to doctors for an answer.
After multiple visits, the doctors suggested undergoing a genetic test to shed light on her troubles. It was revealed that Arya was battling the rare baby killer called SMA type2, Spinal Muscular Atrophy. SMA is a degenerative genetic condition that affects the motor neurons in her body.
Despite these problems, Arya has made the best out of her life. She sees the world around her with glimmering hope and happiness.
Parent’s heard people asking questions like:
how long will you keep fighting against the impossible?
Why don’t you give up already?
You can’t fight nature; she will remain a burden
But they don’t see what we see. We’ve seen a child who has truly enjoyed life.
Who doesn’t see her wheelchair as something lesser than. Someone who is a capable, smart and happy person, not a liability or a burden, but a true joy to share time and memories with.
“How can we ever stop fighting for her or even think of leaving her corner”- says Rahul Pathak, Arya’s Father.
It’s time we stopped treating people with diseases as liabilities. They are as much a part of our world as we are. And for that reason we need to come together to change the future for the better.
Arya deserves to be a part of the future but it’ll only be possible if she escapes the clutches of SMA in the present.
16 crores may be a lot but it would be nothing in front of your kindness and willingness to save a child.
A small donation from your end may tip the scales in the favor of Arya. Pledge to save her life.
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